England Guest Blogger

Name: Jodie
Age: 21. Nearly 22.
Where I live: England
Conditions: Fibromyalgia, Partially Prolapsed Disc, Depression, Anxiety, Stress, IBS (Bowel and Bladder), Migraine, Sinusitis, Suspected Gastroparesis, Insomnia...need I continue? xD

How they effect my daily life: Constant Pain. Suicidal Ideation. Panic Attacks. Anger. Can't eat properly, sleep properly, relax properly. Makes me prone to aggression. Makes me vomit for hours on end.

My medical care: Intermittent at best. Diabolical at worst.

Do they treat me fairly? Questionable. Up until the last couple of years, I was pretty much written off as a hypochondriac with mental health issues. Had to be suicidal before they put me onto anything stronger than OTC painkillers. I literally asked my own mother, at three in the morning, to crush all my pills into a glass of water and let me drink the lot. That's the point I got to and it STILL took months before any actual progress in my diagnosis was made despite me being with the local Chronic Pain Team since 2008/9. Even with my diagnosis, after a few months I was deemed to be able to cope on my own for the most part without any outside support and I was informed I had made one of the quickest 'acceptances' of my situation they'd ever seen. I'd been suffering for eight long years with no straight answers. Just theories and excuses-the relief to hear the words 'You have Fibromyalgia' was unimaginable.

Any unconventional treatments you use? Wouldn't call them 'treatments' in the traditional sense but Alcohol and Smoking are two of the main 'consistencies' in my 'personal' treatment plan. Judge me all I want but it's the sense of control I get from them. I can decide to have a drink or have a cigarette whereas I don't get to decide on the mind altering agony and distress my conditions cause. I also taught myself to walk again by going out with my friend and her two year old son. At first, I'd have both of my crutches but would pop them on the pushchair and use that to support myself, then I dropped it to one whilst still using the pushchair to support myself, then I'd leave them in the car and only use the pushchair. Then one day, my friend's little boy wanted me to hold his hand as he toddled around the town. Seriously, you can't say no to this little guy's face so I left the pushchair and went to take my stick...he pushed it away and just told me to hold his hand. He'd stop and watch me walking and stopped when it seemed like I needed a break but he'd encourage me to 'toddle' with him, squealing encouragement and babbling away happily.
If it wasn't for him, I'd probably still be struggling to walk without aids. Sure, sometimes I need my crutches or my wheelchair but it's less frequent. To be honest, he was more use to me than the months of physical therapy I'd been through. He had no reason to criticise or make me feel inadequate-I'm just his Aunty JoJo with the funny legs that needs some help sometimes.

What hobbies or activities are you still able to do? Reading, Writing, Studying and Researching. That said, I'm no where near as competent as I once was. I find it difficult to concentrate, fall asleep easily and find it hard to find the drive to do any of them anymore...which is most definitely an issue at college.

Any advice to our readers? Try Cymbalta. It has been a miracle drug for me. Obviously, I know drug treatments are a minefield for Fibromyalgia patients as what works for one won't work for another but what have you got to lose? And Domperidone. I'd still be living off Pickled Onion Monster Munch, Peperamis, Strawberries, Mini Iced Ring Doughnuts and Pepsi without it.

Anything you'd like to add? Try and accept that life isn't going to go back to the way it was but do not for a MOMENT let anyone make you think you're not allowed to grieve for what was and what could have been. You are effectively suffering a bereavement. The loss of your former life for your present life. It's going to be hell, and there are going to be some days when your brain is telling you that enough is enough, but if there is anything-anything at all that can make you think 'You know what? Let's see how tomorrow is' even if it's just a bacon sandwich the next morning or a chat with a friend, try and hold on to it.
If it's still bad in the morning...I understand.

Guest blogger on Chronic Migraines

Danielle is a 29 year old who lives in Oklahoma. She suffers from chronic migraines.

Her daily life is effected by the fact that she has some sort of headache every single day. She takes medications to keep them tolerable, but She does not remember a life without pain. She has missed more days of work than She cares to count up because of migraine pain.

When asked if she had doctors that treated her fairly she said, "I have had more than my fair share of doctors who don’t listen and doctors who seem to not care. But I have fought and finally found doctors who believe me and believe that there will be a way for me to live pain free."

When asked what meds she takes that have been helpful, or unconventional treatments, she replied, "I take 800 mg of Neurontin three times a day to help “prevent” the migraines. Most of the time this just brings it to a more tolerable level. I also take 400 mg of Vitamin B2 per day and 1000 mg of Magnesium per day. These have been proven to help reduce migraines. I have a prescription for Fioricet, but I rarely take it because I don’t find that it helps at all. I generally take Excedrin migraine on a daily basis. I have tried chiropractors and acupuncture to no avail."

Hobbies or activities she is still able to do include: I am able to work the majority of the time. I am still able to play with my children, and enjoy weekends with my husband. The thing I miss out on the most is the general happiness that comes from being pain free. My almost 4 year old daughter has come to know me as being in bed. I want to change that. She already knows when I’m not feeling well and tells me “Mommy, you need to go to bed."

Any advice to our readers? If your doctor isn’t listening to you, find someone else. There is no reason to live your life in pain and feel like no one is listening to you or taking you seriously. There are TONS of doctors out there, you just have to find the right one.

Also she'd like to add, If you are a family member/friend of someone who lives in chronic pain, please take them seriously. Please don’t downplay their situation or make them feel bad about it. Trust me, they already feel bad enough. I have spent many days in bed feeling terrible because my kids are growing up without me. I sincerely wish I could feel better. I pray about it, I take my meds, I go to the doctor. Give support. Don’t think just because they look ok, that they actually are ok. When you live in chronic pain you learn how to put on your happy face and go about your day because that’s what you have to do.

Guest blogger: Danielle Brigance
Authored by: Amanda Lakso

Treating Fibromyalgia Pain: Medication Options

Treating Fibromyalgia Pain: Medication Options:

As the song goes, "I had a bad day...."

Yesterday I cleaned up my disaster area around the couch. Let me say it's 90% done!!! Huge challenge accomplished! Hubby was so proud of me. BUT I haven't slept since Monday night, had to go get an Imitrex shot today cause my migraine wouldn't stop. (Never had one of those shots or pills) I was throwing up all night and just felt like dirt. So, I actually made it by my self to the doc appointment I already had, my cardiologist recommended a blood pressure med to get my resting pulse under control. So, add that med to the list of the growing monster of them. 174 pulse resting is not good btw. lol. So, now I have Imitrex pills,  blood pressure pills and the other about 14 other meds. Doc says blood pressure meds are not good for those with bipolar, like me, cause it can cause even more depression. UGH!!! Let's see what blows up this time!!! ha ha.

On a different note, I have a couple of friends going through some rough times, would just like them to know they are loved. :) as are the rest of all you that are actually reading this. Take care all!!